Family Fun Weekend July 16-18, 2021
Registration now OPEN!
A 2021 GACI Global Family Conference has been in the works for almost two years. While we are of course disappointed that the COVID-19 pandemic has caused a disruption to these plans, we are choosing to focus on the positive. Thanks to technology, we are still able to offer a weekend full of questions & answers, information & support, learning & fun. Families from the GACI/ARHR2 Community around the world are invited to come together for this special opportunity.
This virtual conference will give attendees the opportunity to meet leading doctors and researchers on these rare conditions, as well as hear about new medical research. Participants will also be able to ask questions, hear from other families affected by the condition, and find support and encouragement. There will also be opportunities for fun and laughter!
Schedule of Events
Friday July 16, 2021 3:15 p.m. Fun Community Game/Ice Breaker
Friday July 16, 2021 4:00 p.m. Presentation by Inozyme Pharma
Saturday July 17, 2021 1:30 p.m. Painting Party! (materials provided)
Saturday July 17, 2021: 4:00 p.m. Presentation by Dr. Carlos Ferreira of the National Institutes of Health
Sunday July 18, 2021. 4:00 p.m. Q&A session with Experienced Families
Cost of the Conference
All costs associated with this event are completely covered by GACI Global. We look forward to seeing many of the amazing and inspiring members of our community come together!
Goody Bags & Painting Supplies
Participants who register by June 10 will be eligible to receive a goody bag full of treats and surprises for the whole family. Those who are interested in participating in the painting party must also register by June 10 in order to receive the supplies in time. The June 10th deadline for paint kits & goody bags has now passed and orders have been placed. We are still accepting late registrations for events. If we have any leftover goody bags or paint sets, they will be sent out to late registers on a first come first serve basis until any extra supplies are depleted.