Events & Fundraisers
For the latest information on events and medical seminars related to GACI/ARHR2 or rare diseases, please follow us on social media @gaciglobal.
Current Events/Campaigns/Special Days
Rare Disease Day – Feb. 28th, 2021.
2021 GACI Global Family Conference
Unfortunately, we have had to make the difficult decision to switch to a virtual event. The health and safety of the members of our GACI/ARHR2 community is our number one priority. With the ongoing pandemic, we feel that a virtual event is the safest option for everyone at this time. We hope to be able to offer an in-person family event at some point in the near future when it is once again safe to gather together.
In lieu of our planned conference, in July 2021 we will be holding the
GACI Global Virtual Family Fun Weekend. We will offer something for everyone – parent/patient discussion groups, Q&A with experts, scientific updates, and fun activities for the whole family!
Past Events
GACI Global Worldwide Walk – Sept. 12th, 2020.
The GACI Global Worldwide Walk was held on September 12th, 2020. For the first time ever, members from the GACI/ARHR2 community were unified on one day around one shared cause when they participated in the GACI Global Worldwide Walk. Thank you to everyone who walked with us to raise awareness and to raise money to further the mission of GACI Global – to connect families to each other and the medical community, to provide current educational resources, and most importantly to support ongoing research for better treatment options. We can’t wait to do it again next year!
GACI Global 2019 Hope Award
The recipient of the 2019 Hope Award was Donna Hicks! Donna has given freely and willingly of her time to support GACI Global in our endeavors. More importantly, she has long been a source of support and encouragement for many in the GACI / ARHR2 Community. She is always willing to answer questions, offer a listening ear, or provide encouragement to those that are still in the trenches of a GACI diagnosis. Congratulations to Donna! ❤️
GACI Global Family Meeting 2019
Global Genes RARE Patient Advocacy Summit
The RARE Patient Advocacy Summit is a wonderful opportunity to make connections with other people affected by rare diseases. It is a two day program of workshops, dinners and presentations on cutting edge research and therapies. It is the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world.
Dates: September 18 – 20, 2019
Location: Sheraton, San Diego Hotel & Marina, San Diego, CA
