Events

For the latest information on GACI/ARHR2 events and medical seminars related to GACI/ARHR2 or rare diseases, please follow us on social media @gaciglobal.

Current Events/Campaigns

GACI Global 2019 Hope Award

Hope Award Post

The recipient of the 2019 Hope Award is Donna Hicks! Donna has given freely and willingly of her time to support GACI Global in our endeavors. More importantly, she has long been a source of support and encouragement for many in the GACI / ARHR2 Community. She is always willing to answer questions, offer a listening ear, or provide encouragement to those that are still in the trenches of a GACI diagnosis. Congratulations to Donna! ❤️

GACI Global Travel Scholarship

Click here for scholarship details

GACI Global Family Meeting 2019

Please let us know if you can join us at our GACI Global Family Meeting.  The meeting is being held in the Sheraton San Diego Hotel & Marina on September 18th, 2019.  Time to be confirmed.  Inozyme, the pharmaceutical company working on developing a new treatment for GACI, will also be hosting a meeting for our group on the same day. Please complete the sign up form if you hope to attend.

Upcoming Events

Past Events

GACI Global Family Meeting 2019

Hands around GACI Global drawn in the sand
GACI Global Rocks

Global Genes RARE Patient Advocacy Summit

The RARE Patient Advocacy Summit is a wonderful opportunity to make connections with other people affected by rare diseases. It is a two day program of workshops, dinners and presentations on cutting edge research and therapies. It is the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world.

Dates: September 18 – 20, 2019
Location: Sheraton, San Diego Hotel & Marina, San Diego, CA