Events
For the latest information on GACI/ARHR2 events and medical seminars related to GACI/ARHR2 or rare diseases, please follow us on social media @gaciglobal.
Current Events/Campaigns/Special Days
Rare Disease Day – Feb 29th, 2020.
GACI Global Worldwide Walk – May 16th, 2020.
Click here for more information.
Past Events
GACI/ARHR2 Awareness Day – February 1st, 2020.
Around the world, Rare Disease Day is acknowledged on the last day of February, a month known for having a ‘rare’ number of days.
We are kicking off the ‘rare’ month of February with the second annual GACI/ARHR2 Awareness Day on February 1, 2020. Please join us in spreading awareness of the ultra-rare conditions of Generalized Arterial Calcification of Infancy (GACI) and Autosomal Recessive Hypophosphatemic Rickets Type 2 (ARHR2). Click here to find out more information about GACI/ARHR2 Awareness Day and how you can help to spread awareness of GACI/ARHR2 on Feb 1st.
GACI Global #GivingTuesday Campaign 2019
Our Giving Tuesday Fundraiser has now ended and thank you to everyone who donated. If you’d still like to donate, you can donate here on our website. All donations, whether big or small, are gratefully appreciated. Thank you for supporting GACI Global. Your contributions allow us to further our mission of connection, education, research and hope.
GACI Global 2019 Hope Award
The recipient of the 2019 Hope Award is Donna Hicks! Donna has given freely and willingly of her time to support GACI Global in our endeavors. More importantly, she has long been a source of support and encouragement for many in the GACI / ARHR2 Community. She is always willing to answer questions, offer a listening ear, or provide encouragement to those that are still in the trenches of a GACI diagnosis. Congratulations to Donna! ❤️
GACI Global Family Meeting 2019
Global Genes RARE Patient Advocacy Summit
The RARE Patient Advocacy Summit is a wonderful opportunity to make connections with other people affected by rare diseases. It is a two day program of workshops, dinners and presentations on cutting edge research and therapies. It is the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world.
Dates: September 18 – 20, 2019
Location: Sheraton, San Diego Hotel & Marina, San Diego, CA
