Events

For the latest information on events and medical seminars related to GACI/ARHR2 or rare diseases, please follow us on social media @gaciglobal.

Current Events/Campaigns/Special Days

GACI Global Worldwide Walk

New date to be announced.  Click here for more information.

GACI Global Travel Scholarship

Click here for scholarship details

GACI Global Family Meeting 2019

Please let us know if you can join us at our GACI Global Family Meeting.  The meeting is being held in the Sheraton San Diego Hotel & Marina on September 18th, 2019.  Time to be confirmed.  Inozyme, the pharmaceutical company working on developing a new treatment for GACI, will also be hosting a meeting for our group on the same day. Please complete the sign up form if you hope to attend.

Upcoming Events / Special Dates

Past Events

GACI/ARHR2 Awareness Day – February 1st, 2020.

Around the world, Rare Disease Day is acknowledged on the last day of February, a month known for having a ‘rare’ number of days.

We are kicking off the ‘rare’ month of February with the second annual GACI/ARHR2 Awareness Day on February 1, 2020.  Please join us in spreading awareness of the ultra-rare conditions of Generalized Arterial Calcification of Infancy (GACI) and Autosomal Recessive Hypophosphatemic Rickets Type 2 (ARHR2).  Click here to find out more information about GACI/ARHR2 Awareness Day and how you can help to spread awareness of GACI/ARHR2 on Feb 1st.

GACI Global #GivingTuesday Campaign 2019

Our Giving Tuesday Fundraiser has now ended and thank you to everyone who donated.  If you’d still like to donate, you can donate  here on our website.  All donations, whether big or small, are gratefully appreciated.  Thank you for supporting GACI Global.   Your contributions allow us to further our mission of connection, education, research and hope.

GACI Global 2019 Hope Award

Hope Award Post

The recipient of the 2019 Hope Award is Donna Hicks! Donna has given freely and willingly of her time to support GACI Global in our endeavors. More importantly, she has long been a source of support and encouragement for many in the GACI / ARHR2 Community. She is always willing to answer questions, offer a listening ear, or provide encouragement to those that are still in the trenches of a GACI diagnosis. Congratulations to Donna! ❤️

GACI Global Family Meeting 2019

Hands around GACI Global drawn in the sand
GACI Global Rocks

Global Genes RARE Patient Advocacy Summit

The RARE Patient Advocacy Summit is a wonderful opportunity to make connections with other people affected by rare diseases. It is a two day program of workshops, dinners and presentations on cutting edge research and therapies. It is the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world.

Dates: September 18 – 20, 2019
Location: Sheraton, San Diego Hotel & Marina, San Diego, CA