Patient Stories
Whether it’s caused by ENPP1 or ABCC6 Deficiency, every family’s journey with GACI and/or ARHR2 is unique. The road can be exhausting, challenging, heartbreaking, hopeful, and inspiring. Read on to discover some real-life patient stories as told in their own words. If you’d like to share your story, please contact us.

Laura & Martina’s Story – Italy

Ruben’s Story – United Kingdom

Laura’s Story – Italy

Janine’s Story – United Kingdom

Liam’s Story – United States

Sir’Savion’s Story – United States

Callum & Nora’s Story – United States

Natalie’s Story – United States
