Patient Stories
Whether it’s caused by ENPP1 or ABCC6 Deficiency, every family’s journey with GACI and/or ARHR2 is unique. The road can be exhausting, challenging, heartbreaking, hopeful, and inspiring. Read on to discover some real life patient stories as told in their own words. If you’d like to share your story, please contact us.

Janine’s Story – United Kingdom

Liam’s Story – United States

Sir’Savion’s Story – United States

Callum & Nora’s Story – United States

Natalie’s Story – United States
